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Invitation for US parents of children ages 7+ with ARFID/extreme picky eating

Note from Dr. Bulik: WOW! If the response to this invitation is any indication, there is a BIG need for this research! Thank you to everyone who has responded. We now have enough people for our parent community feedback sessions. Watch this space for when we launch the study in the fall! THANK YOU all!

Dear Parents,

We are reaching out to you on behalf of the study team of the Avoidant/Restrictive Food Intake Disorder Genes and Environment  or (ARFID-GEN) study to invite you to participate in a Zoom session to guide us in how best to interest parents of children and children with ARFID (also known as selective eating or extremely picky eating) in participating in our study.

ARFID-GEN is the first study worldwide to explore genetic and environmental factors that contribute to the development of ARFID. We are hoping to involve parents before we start the study to get your input on the design of the study, the questions we are asking, the materials we are using, and how best to identify parents of children with ARFID across the United States. At this point participation is limited to those who live in the U.S. and to children ages 7-17. Individuals ages 18+ with ARFID will also be able to be in the study, but will not be participating in this feedback session.

We are inviting you to participate in a community feedback session (also called a stakeholder studio). Your participation would involve reviewing a few study materials prior to participation (30 minutes) and a 1.5 hour Zoom meeting, led by a facilitator who is not a member of the study team. You will also complete a questionnaire afterwards so that you can comment on your experience. You will be offered the opportunity to participate in future groups if you remain interested. You will be reimbursed $150 for your time and for sharing your thoughts and experiences with the group.

We are currently considering the evening of Monday July 25th 7-8:30pm Eastern for this meeting.

We appreciate your interest in helping our team ensure that all families and children living with ARFID are represented in our science.

If you are interested or have any questions, please contact me by email: cbulik@med.unc.edu.

Kind regards,
Cynthia Bulik, PhD, FAED
ARFID-GEN Principal Investigator

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