Clinical Trials and Other Research Studies
“Embrace the Data” Daniel Le Grange, PhD, F.E.A.S.T. Advisor
Research and the Treatment of Eating Disorders
F.E.A.S.T. supports evidenced-based treatment of eating disorders. This means patient care must be based on verifiable data. This data primarily arises from research studies. Studies are designed to evaluate and compare the effects of different treatment approaches on health outcomes.
Since health care costs are often a serious burden, enrolling in a clinical trial may be seen as a way to obtain otherwise expensive care at no cost to participants. Generally speaking, participants in a clinical trial have a desire to find an effective treatment (benefit to self) and a desire to add to the body of knowledge for others suffering from the same disease (benefit to others).
All reputable clinical studies should undergo review by an institutional review board (IRB), also known as an independent ethics committee or ethical review board.
F.E.A.S.T. does not endorse any particular study. Our goal is to offer caregivers and patients who may be considering this option, information that can help with this determination. We believe the decision to participate in a clinical trial is highly individual and best made between caregivers and their medical and therapeutic team.
Email F.E.A.S.T. staff if you have a research study or survey you would like to have us post below.
Research Currently Seeking Participants:
February 24, 2021
Seeking Carers from the BAME Community for an Advisory Group
We are looking for 4-5 UK based Adults who are carers of children with mental health difficulties including eating disorders for a BAME advisory group…
November 13, 2020
Stanford ARFID Treatment Study
The Stanford Department of Psychiatry and Behavioral Sciences is inviting children ages 6-12 with a diagnosis of ARFID (Avoidant/Restrictive Food Intake Disorder) and their families…
October 13, 2020
UNC/EDGI is Seeking 6000+ Study Participants in the US
University of North Carolina (UNC) researchers are seeking more than 6,000 participants in the United States aged 18 years and over with first-hand experience of…
August 28, 2020
Research Study For Females With Restrictive Eating Behaviors
~Posted at the request of the researcher Massachusetts General Hospital Neuroendrocrine Unit & Eating Disorders Clinical and Research Program “REACT is a 12-week study for…
July 13, 2020
Survey For Those Caring For Someone With An Eating Disorder – UK
~Posted at the request of the researcher Promo video link: https://tinyurl.com/y99bukju Survey link: www.tinyurl.com/yayl4zy9 Synopsis We would like to better understand the experiences of adults…
July 8, 2020
University of Canberra Research: Parents Seeking Help for Adolescence with Disordered Eating
~Posted at the request of the researcher My name is Eleanor I am a psychology honours student at the University of Canberra. I am currently…
June 22, 2020
Are You A Parent With An Experience Of Having An Eating Disorder?
~Posted at the request of the researcher University of Surrey We are looking for individuals with experiences of being parents with eating disorders to take…
April 28, 2020
Supporting eating disorder research related to Covid-19
F.E.A.S.T’s focus on evidence-based treatment comes from our support for scientific inquiry and data. Good treatment and results depend on the work of researchers asking…
March 19, 2020
Comparing Standard FBT and Guided Self-Help FBT
POSTED BY REQUEST OF THE RESEARCHERS (UPDATED Octobe3r 25, 2019): FEASIBILITY OF CONDUCTING A RANDOMIZED CONTROLLED TRIAL COMPARING STANDARD FBT AND GUIDED SELF-HELP FBT FOR…
- If you are considering a randomized interventional trial, it is important to review all of the treatment arms (control and interventions) that will be offered. Patients randomized into “control” groups would not receive the experimental treatment or medications that are under investigation. Typically, control groups would receive placebo medications or other traditional modes of treatment. If this would be a concern to your family, it is important to directly communicate that information to the investigation staff during the application process.
- Patient safety requires that a complete and accurate medical history must be provided during the application process. It is essential to review the time commitment, special testing requirements, and all logistical aspects of study participation.
- When considering a pharmaceutical interventional trial, carefully review the risks and benefits of medications being tested, including potential side effects.
- After reviewing the study protocol, write down any questions you may have. You can ask for all answers to be provided in writing. Be sure you are comfortable with the protocols and objectives, care during and after study completion, the research team itself, and the setting where care will be provided. It’s important to consider how every requirement of participation will impact your family and your child, before consenting to any study.
- You may speak with one of the investigators at any time if you have concerns about the study itself or other staff members.
- We encourage all families considering this option for care to thoroughly review these questions.
- Although you may withdraw at any time, it is best not to enroll in a study if you have reservations from the onset.