Clinical Trials and Other Research Studies
“Embrace the Data” Daniel Le Grange, PhD, F.E.A.S.T. Advisor
Research and the Treatment of Eating Disorders
F.E.A.S.T. supports evidenced-based treatment of eating disorders. This means patient care must be based on verifiable data. This data primarily arises from research studies. Studies are designed to evaluate and compare the effects of different treatment approaches on health outcomes.
Since health care costs are often a serious burden, enrolling in a clinical trial may be seen as a way to obtain otherwise expensive care at no cost to participants. Generally speaking, participants in a clinical trial have a desire to find an effective treatment (benefit to self) and a desire to add to the body of knowledge for others suffering from the same disease (benefit to others).
All reputable clinical studies should undergo review by an institutional review board (IRB), also known as an independent ethics committee or ethical review board.
F.E.A.S.T. does not endorse any particular study. Our goal is to offer caregivers and patients who may be considering this option, information that can help with this determination. We believe the decision to participate in a clinical trial is highly individual and best made between caregivers and their medical and therapeutic team.
Email F.E.A.S.T. staff iIf you have a research study or survey you would like to have us post below.
Research Currently Seeking Participants:
January 27, 2023
A qualitative exploration of caring for males with an eating disorder
Ethics code: UG 22 077 A qualitative exploration of caring for males with an eating disorder General information This research aims to investigate the experiences…
January 27, 2023
Research Opportunity in Canada – Youth and Primary Caregivers with Lived Experience, Professionals
Principal Investigator, Dr. Nicole Obeid is leading a national study in Canada examining the social and economic impacts of the pandemic on youth (5-25 years)…
November 8, 2022
Exploring the impact of the UK government’s menu labelling legislation on people with experience of eating disorders
This opportunity for research study participation ends on Friday, 11 November 2022. The United Kingdom government requires most cafes & restaurants to have calories on…
November 3, 2022
UK Study investigating caregivers’ experience caring for a male with an eating disorder
Hi there, My name is Sasha and I am final year Psychology student at the University of Bath. For my undergraduate dissertation project, I am…
October 5, 2022
Mount Sinai in New York City’s Eating and Weight Disorders Program is Seeking Participants for 4 Studies
Decision-Making & Food Choice for Those with AN between 18-45 Years of Age The Eating and Weight Disorders Program at Mount Sinai is recruiting individuals…
September 15, 2022
Transcranial Magnetic Stimulation (TMS) in the Treatment of Anorexia Nervosa
SUMMARY Anorexia nervosa is a severe psychiatric disorder associated with food avoidance and body image distortion, that is feeling fat despite being underweight. It…
August 30, 2022
Are you a female who identifies as living with disordered eating or a mother with a daughter who identifies as living with disordered eating?
Schema therapy is emerging as a promising therapy for EDs that goes into depth about the underlying causes of a person’s psychological issues. One part…
August 23, 2022
Short Psychological Intervention for Children and adolescents with Eating disorders (SPICE) study
Are you a young person, or a parent/carer of a young person, with lived experience of an eating disorder? We would love to hear your…
August 11, 2022
Are you a parent caring for a young person (12-17 years old) with Anorexia Nervosa?
Are you caring for a child with anorexia nervosa? We are interested to hear about your experiences! Carer stress is common amongst parents caring for…
- If you are considering a randomized interventional trial, it is important to review all of the treatment arms (control and interventions) that will be offered. Patients randomized into “control” groups would not receive the experimental treatment or medications that are under investigation. Typically, control groups would receive placebo medications or other traditional modes of treatment. If this would be a concern to your family, it is important to directly communicate that information to the investigation staff during the application process.
- Patient safety requires that a complete and accurate medical history must be provided during the application process. It is essential to review the time commitment, special testing requirements, and all logistical aspects of study participation.
- When considering a pharmaceutical interventional trial, carefully review the risks and benefits of medications being tested, including potential side effects.
- After reviewing the study protocol, write down any questions you may have. You can ask for all answers to be provided in writing. Be sure you are comfortable with the protocols and objectives, care during and after study completion, the research team itself, and the setting where care will be provided. It’s important to consider how every requirement of participation will impact your family and your child, before consenting to any study.
- You may speak with one of the investigators at any time if you have concerns about the study itself or other staff members.
- We encourage all families considering this option for care to thoroughly review these questions.
- Although you may withdraw at any time, it is best not to enroll in a study if you have reservations from the onset.